In cooperation with the Comprehensive Cancer Centre Netherlands - Eindhoven I am doing research on the long-term effects of cancer and its treatment on the psysical and psycosocial functioning of cancer survivors. At the moment, my research focusses on two themes; 1) the role of Type D personality on the long-term side-effects of cancer and its treatment, and 2) chemotherapy side-effects like chemotherapy-induced alopecia and chemotherapy-induced peripheral neuropathy.
Most recent publications
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Most recent publications
In cooperation with the Comprehensive Cancer Centre Netherlands - Eindhoven I am doing research on physical (e.g. health status, disease-specific complaints, comorbidity, fatigue) and psychological health (e.g. quality of life, Type D personality, anxiety, depression, disease perception) and health care utilisation among long-term cancer survivors. At the moment, we are doing studies among patients with endometrial cancer, colorectal cancer, multiple myeloma, chronic lymfatic leukemia, Hodgkin lymphoma and non-hodgkin lymphoma. These are population-based prospective studies in which 10 hospitals in this area participate. The data for this project is partly collected by paper-and-pencil questionnaires and partly by the online PROFILES system, for which we received an investment grant from NWO in 2009.
During my career, my research interest was mainly focused on HRQoL of cancer survivors since many of those survivors face continuing problems with respect to cancer and its treatment. Most of my studies are focused on signalling (and possibly preventing) problems caused by treatments that have a negative influence on HRQoL. The impact of chemotherapy induced side-effects has my special interest. For example, scalp cooling to prevent chemotherapy-induced hair loss has been an important topic which resulted in several publications on scalp cooling, a grant for the development of a decision-aid for scalp cooling, and a guideline for the treatment of chemotherapy-induced hair loss. Also, chemotherapy-induced peripheral neuropathy (CIPN) is a frequent side-effect of chemotherapy that has my specific interest. So far, this new line of research has resulted in the development of a CIPN questionnaire, a study that describes CIPN among short-term survivors, two publications on long-term cancer survivors, two systematic reviews, and a pilot study testing a possible preventive method.
PhD students whom I co-supervise(d);
2009-2013; Olga Husson. Information provision and patient reported outcomes in cancer survivors; with a special focus on thyroid cancer. Defence; March 1st 2013.
2009-2014; Simone Oerlemans. Late effects and long-term health related quality of life in lymphoma patients. Defence; November 7th 2014.
2012-2016; Tonneke Beijers. Chemotherapy-induced peripheral neuropathy.
2015-2019; Cynthia Bonhof. Chemotherapy-induced peripheral neuropathy.
-Member of the University Labor Representation Board (Jan 2013 - present).
- Member of faculty council, Tilburg School of Social and Behavioural Sciences of Tilburg University (Sept 2008 - present).
-Vice chair of Science Committee, Tilburg School of Social and Behavioural Sciences of Tilburg University (april 2012 - present).
- Executive board, PROFILES (Patient Reported Outcomes Following Initial treatment and Long term Survivorship), www.profielstudie.nl (May 2010 - present).
- Member of the workgroup "Selfmanagement NPCFCBO" initiated by the "kwaliteitsintituut voor de Gezondheidszorg CBO" and the "Nederlandse Federatie van Kankerpatiëntenorganisaties (NFK)" (Sept. 2009 - Nov. 2010).
- Member of the European Hematology Association Scientific Working Group "QoL and symptoms" for the development of guidelines on "Patient-Reported Outcomes in Hematology" (May 2009 - 2013).
Room T 511
PO Box 90153 5000 LE Tilburg
|Phone||+31 13 466 3482|
|Secretary||+31 13 466 2175|
|Fax||+31 13 466 2067|
TS Social and Behavioral Sciences
Medical and Clinical Psychology