November 5 - World Digital Preservation Day 2020
Today is World Digital Preservation Day (WDPD). The aim of this day is to create greater awareness of digital preservation. It is celebrated on the first Thursday of November every year. This year’s theme is ‘Digits: for Good’.
In the spotlight: PROFILES Registry
Today, we would like to emphasize the importance for the long-term preservation of research data. For example, our university has the Patient Reported Outcomes Following Initial treatment and Long term Evaluation of Survivorship (PROFILES), an initiative together with the Netherlands Comprehensive Cancer Organization (IKNL). This is a registry for the study of the physical and psychosocial impact of cancer and its treatment. Data come from a dynamic, growing population-based cohort of both short and long-term cancer survivors. PROFILES aims to provide a national and international resource for research into the psychosocial well-being of cancer survivors.
Lunch Meeting Spring 2021
An online lunch meeting about the PROFILES Registry will be organized in the Spring of 2021.
Topics to be discussed:
- Sharing of data: how and with whom
- Data storage infrastructure
- How to keep data safe
- Benefits for patients, doctors, and researchers
Please keep an eye on the university’s event calendar for the exact date or subscribe to the Research Data Management mailing list.
WDPD Festivities on November 5, 2020
For questions, you can contact the Research Data Office.