TILT's 25th Anniversary Year: Events in June
TILT's anniversary events in June will revolve around "Health" and is organized by Robin Pierce and Tineke Broer.
National health systems nowadays are under strain, due to demographic change, an increase in chronic diseases as opposed to infectious diseases and also rising patient expectations. Together with omnipresent budget cuts, it is clear that there is a pressing need for better, more efficient health care. In this debate, personalized medicines and eHealth are often presented as panacea, radically changing the way patients are cared for and treated. Personalized medicine stands for a paradigm shift in medicine, moving from a "once size fits all" approach towards using individuals phenotypes and genotypes in order to develop a patient specific therapeutic strategies. Also eHealth is argued to bring many benefits to patients, health care professionals but also the health care systems as such, through revolutionizing the delivery of care.
In this month, we will critically examine the promises through the legal and ethical lens, focusing on the impact of personalized medicine and eHealth on patients. How can patients benefit from personalized medicine and eHealth? What role should patients play in the decisions on how to regulate new health technologies? What risks do these technologies entail for patients?
The following events will take place in June:
- Keynote Lecture: Carlo Botrugno
27th of June, 16.00-17.30, Blackbox, Esplanade Building (coffee/tea before in Blackbox and drinks afterwards in the Esplanade)
Carlo Botrugno graduated in Legal Sciences (2005) and in Social Work (2012) at the University of Bologna; he holds a Master in Law (2008), and a PhD in Law and New Technologies (2016) from University of Bologna. Currently, he is a postdoctoral researcher at the Department of Legal Sciences of Florence University. He is founder and co-coordinator of the Research Unit on Everyday Bioethics and Ethics of Science (RUEBES), which is part of the L'Altro Diritto Interuniversity Research Centre. He has been postdoctoral fellow at the Institute of Health Care Ethics of Slovak Medical University (SZU); and visiting PhD student at: Centre for Social Studies (CES) of Coimbra University; Porto Alegre Clinicas Hospital (HCPA); Porto Alegre Uniritter dos Reis University. His main research interests are related to: biolaw, bioethics and medical ethics; ITs and technological innovation in healthcare; public policy and health law; human rights, discrimination and citizenship; migration, vulnerability and social determinants of health.
Abstract: "Information technologies in healthcare: towards a new geography of right to health"
Contemporary healthcare systems are going through the 'digital turn', i.e. the progressive incorporation of information technologies in daily practice with the purpose of improving the quality and increasing the efficiency of healthcare-delivery process. Despite the flourishing of research in this field, legal scholars have shown a clear predilection for some issues among which include data-protection, confidentiality, licensure and liability. Nevertheless, there is a need for a more comprehensive approach through which to address the overall impact of digitalization processes on the organization of the healthcare systems. I argue that such an impact may be described in terms of a new geography of right to health, in which space, places, legal provisions, technological artefacts and relations of power converge, reshaping the content of the existing rights and leading to the appearance of new ones.
His lecture is intended for the academic community at Tilburg University and free of charge, but please register via Ghislaine van den Maagdenberg: firstname.lastname@example.org.
- Movie: "Ik ben Alice"
18th of June, 20.00-22.00, Woonlandschap de Leyhoeve. (Dokter Bloemenlaan 9-01, 5022 KX Tilburg).
We will watch and discuss the movie "Ik ben Alice". Please buy your ticket here. This event is open to everyone interested. Read more about the film here.
- Public Lecture: "Where do we leave our parents?"
25th of June, 19:15-21:30, LocHal Tilburg
We will have a public lecture on "Where do we leave our parents". Read more about the public lecture here.
- Book discussion: "Life Exposed: Biological Citizens after Chernobyl" by Adriana Petryna
11th of June 2019 ? Tables 7th floor M 13.00-14.00 - Chapter 1 to Chapter 3 (pp. 1-81)
18th of June 2019 ? Tables 7th floor M 13.00-14.00 - Chapter 4 and Chapter 5 (pp. 82-148)
25th of June 2019 ? Tables 7th floor M 13.00-14.00 - Chapter 6 to Chapter 8 (pp. 149-220)
All the information can also be found on www.tilt25.com.